The challenges and rewards of caring 

For Jo, the hardest part of being a carer has been the sheer exhaustion. 

“When you co-parent a neurodiverse family member, it’s the adrenal fatigue that gets you. You are so tired. No one understands, no one comes to your assistance, and everyone judges you.” 

She recalls one of the most difficult days: parenting her young children while rushing her husband to the Alfred Hospital, only to discover he had contracted viral encephalitis. “At that moment, I became a carer for a 47-year-old adult as well.” 

Yet amidst the challenges, there is joy. 

“The rewarding part is seeking out passions and special interests where family members can shine. Their superpowers—whether it’s films, music, literature, sport, or trivia—can be so much fun.” 

Family and connection 

Jo describes her family as “unique and very close.” Her daughter Amélie’s year of independence studying in the US was bittersweet, while her bond with her son Christien is defined by advocacy, cheerleading, and unwavering support. 

Grief, faith, and community 

In 2015, Jo lost three loved ones in just five days. It was family, faith, and community that carried her through. 

“Resilience and support is everything at this time. My church community wrapped me up in cotton wool and helped me face the headwinds. Friends from every stage of life surrounded me. I am forever grateful.” 

Advocacy and healthy hearts 

Jo’s experiences inspired her to launch Healthy Hearts – Advocacy. Education. Support, combining her background in marketing with her lived experience. She has also mentored Monash University students, giving back while reflecting on her own education. 

“There is always something to be gained from sharing knowledge, lived experience, and connection.” 

Looking forward 

Jo wants people to better understand the realities of caring: 

“There are over 6 million unpaid carers in Australia. We sacrifice salary and superannuation. Caring should be recognised as a profession. Adrenal fatigue is real—we need physical, mental, emotional, and spiritual support.” 

Her vision is a world where carers are properly recognised and grief literacy is woven into society. Financial support, professional services, and ongoing community care would mean carers no longer disappear into silence. 

As Jo says, “Our own cup needs to remain overflowing to give the level of guidance and support that our roles necessitate.” 

Jo’s story is a powerful reminder that behind every act of care lies strength, love, and quiet determination. At Griefline, we honour carers like Jo who continue to advocate for awareness, compassion and community connection.

This National Carers Week, we thank every carer for the heart and humanity they bring to the lives of others; and remind them that support is always here when they need it. 💙