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My 6 year old daughter had been undergoing chemotherapy for the last 2 years and 4 months for B-ALL at QCH in Brisbane. We were 3 weeks out from ringing the bell, when we discovered she had relapsed. Even though we were devastated at having to return to living at hospital for treatment, there were still many options available to us, our oncologist was optimistic. We were in re-induction preparing for immunotherapy and a BMT, when she suddenly died of a a fungal infection in her brain. It was growing there, as a runny nose, up her sinuses to her brain. 3 days after her 6th birthday she died in ICU. We were in the safest ward, in the safest room. How does this happen? She went from physically strong and well to dead so quickly. How?
How can I be holding a joyful alive vibrant child one minute, and have nothing but ash the next? How can I be still alive when she is not? It’s wrong. It’s all wrong.
It’s been 21 days tomorrow morning at 7:30am, since she died. It’s early days yet, but I can’t see the point in anything.
I can’t see a future where there is any joy. I have 2 other children, her brothers, 9 & 11. Which people are reminding me all the time, as if I’ve forgotten. And I’m sad for them as well, our happy family is shattered.
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